Gab’s Video EEG Test Results

Gab's Video EEGA week ago Tuesday Gabby had a seizure.  T found her face down on the living room floor and although we aren’t aware how long the seizure lasted it took her about an hour to rest it off and for her speech to return to normal.  After speaking with her Neurologist they decided to admit her into Cook Children’s Hospital this Thursday for a 24 hour video EEG.

Over the past year Gab has been having spells that we weren’t sure were seizures, however now we are more certain.  During the EEG they were able to capture a few spells and clearly see all the abnormal activity going on.

After Gab’s Hemispherectomy in November of 2007 I hoped we wouldn’t have to face the day she started having seizures again.  After her one year post-surgery anniversary we received results saying the stress from the surgery and most likely from prolonged seizures the abnormal brain waves had moved to the right side of her brain.  That was not a fun day for us.  I knew then that this day would come.

I’m trying hard to always remind myself to count our blessings and be thankful that her seizures reduced drastically after her second brain surgery, that we were given the last 3 years for her to start learning again and enjoying life more.  I’m trying hard to not focus on all the downfalls that the surgery caused and how the setback took two years for her to recover from.  Instead I’m trying to remind myself that although we increased her Epilepsy medication in Fall of 2009 we were able to decrease it back down in April of 2010 after a 5 day video EEG to the same dose she was prescribed right after her surgery.  To go slightly over 3 years and be on the same dose of medication is a good sign.  I know all of this.  But it’s still hard.

Her Neurologist let us go home on Friday after the 24 hours was complete.  We were very thankful for that.  He felt the test captured plenty and decided to increase her medication.  After a debate we came to an agreement on a dose we felt was right.  He is going to monitor her, as well as I, and see her again in two months.  If she has another seizure before then we already have a plan in place to increase the dose one more time.  If she starts to have complicated side-effects like she did after the last increase in Fall of 2009 then we will venture the routes of other medications.  The Neurologist also informed me he believes the seizures are due to brain damage on the right side of her brain caused by her stroke in utero.  He said they just must not have seen it before.  We were always told since the stroke was on the left side, only the left side experienced damage thus being why they removed the left side during her Hemispherectomy.

I am trying hard to keep faith that the medication will keep the seizures at bay and pray they do not cause anymore damage.

We appreciate all the support and prayers sent our way.  Our amazing family and friends as well as my social network has been a blessing to us.

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Comments

  1. says

    Dwan, I can’t imagine what you are going through. I’m glad you have some answers, but I know that doesn’t take away the difficulty. I will continue to keep you and Gabby in my prayers every day. You can call me any time, girl!

  2. says

    I can’t believe how happy she looks. I’d be all feeling sorry for myself, and grumbling about getting the wires off and everything. (Trust me, I was. I’ve done the 24hr thing and several smaller ones for my heart)

    I’m glad the Dr decided something needed to be done, and is working with you. No one knows Gabby better than you do, and I think it’s great that he’s listening to you.

    Wish there was something we could do to help. We’ll pray for sure, but always let us know if there’s anything else we can do!
    Erica Mueller´s last blog post ..Focused Creativity

  3. says

    Oh! Not all this again!! I’m praying for her (and you). It’s amazing to watch how stong YOU are through all this. Reminds me to be grateful for everything I have and to quit whining so much over the little things. (Like PIA removing wallpaper!)
    My little guy is sitting her drawing next to me right now. I love just that.

    God bless your family.. :)

  4. says

    I am sorry. I feel your pain. We went through something very similar with our son in July of last year. He’s been good, so far, on his new meds. It’s very scary. I now sleep with a baby moniter in his room, just in case. I hope the best for you and your daughter.

  5. says

    You’re being so strong! I’ll be praying for you and your little one. We have a 1 yr old friend with a severe seizure disorder that is not yet under control. I hope all goes well and that the doctors find the information they need from this test to help your little girl!
    meredith´s last blog post ..Sargent Shriver 1915-2011

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